Because Your Cares Are Our Cares We Will:
Advocate, Raise Awareness of The Condition, Liaise within Communities, Signpost, Education, Mentoring and Support, Here’s How…
There is simply not enough awareness about Sickle Cell Disease (SCD) and its various implications, and many people outside of the African Caribbean community are not aware that they too can be affected. They can either have the condition themselves (there is actually an increase in the diagnosis of white European and Mediterranean communities) or having friends, colleagues or neighbours who may be in need of support.
Those who have Sickle Cell often need support navigating the correct health, social education and community support. Sickle Cell Care Manchester (SCCM) are not clinically trained, therefore we will signpost service users to the specialist nurses, consultants and nurse counsellors within the Greater Manchester Hospitals ensuring that the correct support and a high standard of treatment is always given. We play a significant role in signposting those who may need screening for the status of their condition as this is the only definitive way to establish whether or not someone is an actual Sickle Cell carrier – also known as the trait.
Over the years Sickle Cell Care Manchester have and will continue to take part in radio interviews and live radio phone-in on local radio discussing the various issues that inhabit the Sickle Cell Disease and what it means to live with a ‘carrier status’. Information on Sickle Cell is ever changing therefore we strive to be at the cutting edge of progress and new findings in order to keep the public informed. We also deliver both formal and informal presentations (dependent on what is requested) within community centres, schools, colleges, faith establishments, community workshops and via social media.
We will also advocate for individuals with Sickle Cell and educate their employers and education establishments as those with the condition SCD often times find it very difficult to explain the seriousness and severity of the condition. This also gives the employer or educator a better understanding as to why the Sickle individual may have high sickness record, poor punctuality or difficulty in concentrating and carrying out certain tasks.
Those who are deserving of benefits are frequently not supported properly, and unfortunately not understood by the Department of work and Pensions. We stand as advocates in these exact circumstances and we also receive and are successful with referrals from within the NHS.
Every one who has a sibling/partner/child with Sickle Cell suffers too. It is very difficult to see your loved one in the most agonising pain and being unable to relieve them. Caring for Sickle individuals is very demanding and oftentimes carers can be left exhausted – physically and emotionally – we offer our support by pooling together best practice initiatives and information sharing via our Sickle Cell Care Manchester Support Group.
The condition can cause individuals to isolate themselves in order to either “become less of a burden” or because they feel “no one understands/believes them” in what they are going through. We address this isolation process via home and hospital visits by introducing our clients to similar like-minded people who have a calming and positive attitude towards this condition. SCCM is very strong on befriending also, entrusting that each individual will at all times have someone they can speak to.