ABOUT SICKLE CELL CARE MANCHESTER

An image of paper people being held by a person's hands to highlight how Sickle Cell Care Manchester collaborates with others to support people with sickle.

At Sickle Cell Care Manchester We Believe:

Your Cares Are Our Cares

Sickle Cell Care Manchester is a dedicated non-profit organisation led by a BAME board comprising people personally touched by Sickle Cell Disease (SCD). They either live with it, care for someone who does, or they are passionate advocates for change. They truly understand what it means to live with SCD.

Our Mission is Twofold:

Support and Educate: We empower patients, families, and carers to live life to its fullest, right here in Manchester.

Raise Awareness: We champion awareness across ethnic groups, not just in African and Caribbean communities as SCD increasingly affects white European and Mediterranean populations.

What We Do:

Advice & Signposting

We offer compassionate guidance and connect people with expert nurses, consultants, and counsellors at Greater Manchester hospitals. We work with these hospitals to provide the high-quality medical care that people with SCD need and deserve.

Screening Awareness

Since SCD often goes undetected, we highlight the importance of carrier status screening. People with Sickle Cell Trait (SCT) can access screening to help them make informed decisions. This work helps to raise community awareness that saves lives.

Community Education

Engaging presentations—both formal and informal—are delivered across schools, faith settings, colleges, and via social media. Over radio and live talk-in shows, we actively discuss SCD and carrier status to keep Manchester informed and empowered.

Advocacy in Real Life

We support patients in workplaces and educational settings by raising awareness that SCD can impact attendance, concentration, and well-being. When people face challenges, we offer advocacy and we also support with liaison with DWP and NHS referrals.

Supporting Carers & Isolation

Caring for someone with SCD can be physically and emotionally draining. SCCM’s support groups and advocacy for people at home and in hospital, helps reduce isolation, build friendships, and create a peer community that is compassionate and supportive.

Our dedicated team includes volunteers, survivors, carers, and professionals—all situated across Manchester. Our community is membership-based, outlook-wide, and we collaborate closely with the NHS and other nonprofits to maximise impact.

To sustain our work, we rely on the generosity of volunteers, fundraisers, and public contributions—driven by a vision of care until a cure is found.

“Sickle Cell Care Manchester will work to support those who have been diagnosed with Sickle Cell Disease (SCD), their families, and carers… and raise awareness of SCD in the wider population… to increase understanding of the condition, promote acceptance… and improve quality of life.”

Get Involved with SCCM

Why SCCM Matters

Everyone deserves understanding, empathy, and practical support—no matter their background or journey. Whether you’re dealing with SCD directly or know someone who’s affected, SCCM is your ally for:

  • Awareness and education
  • Connection to trusted medical and social support
  • Community and emotional solidarity
  • A brighter future through advocacy and awareness

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