Myths and Truths
Only the Black Minority Ethnic population gets Sickle Cell Disease
Sickle Cell is a disease that affects people of all different cultural and ethnic backgrounds, including African, Arabian, Israeli, Greek, Italian, Hispanic, Turkish, and Pakistani.
Contrary to popular believe, it is entirely possible for a blond-haired, blue-eyed child of Northern European extraction to have Sickle Cell disease. For this reason, in all UK hospitals, all ethnic backgrounds now are screened at birth for the type of haemoglobin responsible for causing Sickle Cell disease.
Sickle Cell is not contagious. It’s strictly an inherited disease, and only people who are born with this genetic defect can develop it.
Everything you need to know
Myth: I was told that the reason our child has sickle cell disease is because both of us have a gene defect?
Myth: People with Sickle Cell disease cannot contract malaria.
Myth: Nothing has changed in the management of sickle cell disease. It's the same for my child as it was for my uncle, who died from sickle cell disease at a young age thirty years ago.
Myth: Doctors and other healthcare professionals provide all sickle cell treatment, which is medical in nature. As a family, we have no control over anything.
Myth: My child carries the Sickle Cell trait, but this has no bearing on their health, so I don't need to tell doctors about it.
The importance of regular health checks and treatment cannot be overstated. Check ups may involve tests for potential kidney, lung, and liver diseases. Frequently visit a sickle cell anaemia specialist. Additionally, to check for eye damage, schedule routine visits with an eye doctor.
Discover the warning signs and symptoms of a stroke. Long-lasting headaches, limb weakness on one side, limping, and abrupt changes in speech, vision, or hearing are a few of them. Inform your doctor promptly if you experience any of these signs.
Treat and manage any additional medical disorders you may be experiencing, such as diabetes or kidney problems.
If you are pregnant or intend to become pregnant, consult your doctor. You’ll require special prenatal care. During pregnancy, sickle cell anaemia can get worse. Women with sickle cell anaemia are at greater risk for giving birth prematurely or to babies who are underweight at delivery. However, you can have a safe pregnancy with early prenatal care and regular checks.