SICKLE CELL RESOURCES
Sickle Cell Videos
This video by Dr Lewis Thomas MBBS MRCGP, former NHS GP, founder of The SickleVerse, and sickle warrior, aims to help people understand sickle cell medications so they take them safely. Dr Thomas founded The Sickleverse, an education and community platform to help people living with sickle cell, parents and carers understand the condition, make informed decisions and advocate for better care. Watch the video and learn how to take sickle medications safely to improve your health.
This animated video reflects the emotional and practical challenges of transition care. It is based on patient stories shared during the ERN-EuroBloodNet SCD Patients Session at ASCAT 2024 and aims to support awareness, foster understanding, and inspire collaboration to improve transition experiences and outcomes for young people with SCD.
Sickle Services
Red Cell Network
A Haematology Coordinating Centre page that hosts Living with Sickle Cell Disorder – a guide for patients
MTS Sickle Cell Foundation
Website with sickle cell awareness information to distribute to the community for educational purposes
Frontline Geonomics – Lyndsey Fletcher
Sickle Cell Disease: A 2025 Update is a website focusing on developments in geonomics such as gene editing and CRISPR
Liverpool Sickle Cell & Thalassaemia Support Group
A support group based in Liverpool offering a range of activities and events that support people living with sickle cell disease.
Sickle Cell Disease News
Sickle Cell Disease News is a Bionews publication that focuses on sickle stories and news.
Sickle Cell Society
Sickle Cell Disease News is a Bionews publication that focuses on sickle stories and news.
Oscar Birmingham
Charity supporting individuals affected by Sickle Cell and Thalassaemia Disorders.
SickleFES
London based charity connecting individuals with sickle cell disease and helping them feel valued and supported.
Let’s Keep Talking
Sickle Cell Disease: A 2025 Update is a website focusing on developments in geonomics such as gene editing and CRISPR
Health Awareness
Website with articles on health conditions including for people in “rare diseases communities such a sickle cell warriors.
Card Project UK
Based in the Lake District, a company that designs, prints and manages ID cards, including the sickle cell card which some warriors use.
Sickle Cell & Thalassaemia Support Project
A group that addresses health disparities in Wolverhampton, Walsall and Dudley for families affected by sickle cell disease or thalassaemia.
