Sickle Cell Care Manchester
Sickle Cell Disease (also known as Sickle Cell Disorder or Sickle Cell Anaemia) is an inherited condition that affects the red blood cells and can lead to episodes of severe pain or can damage organs and tissues, and may lead to other serious medical problems.
Sickle Cell Disease mostly affects people of African and Caribbean origin, but the condition can affect individuals of any ethnicity.
You can find out more about Sickle Cell Disease, Sickle Cell Trait and discover other useful info on our Resources & Information page:
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The Ricky Casey Trust is a charity that aims to further the understanding and expand the knowledge of Renal Medullary Carcinoma (RMC) and other rare kidney and renal cancers. Ricky Casey was a black 48 year-old, fit and healthy firefighter who was diagnosed with RMC in 2018. RNC is more common in male patients, 70% male compared to 30% female and has a much younger age of onset than other types of kidney cancer. The average age of adults affected by RNC in the largest reported series was 24. For unknown reasons RNC also more commonly affects the right kidney compared to the left.
The discovery that almost everyone with renal medullary carcinoma carries at least one copy of the HbS mutation raises the possibility that sickle cell trait somehow contributes to RMC.
Watch the Fixer’s story about Sanah Shaikh, the first person of Asian descent to be diagnosed with Sickle Cell Disease in the North West. The video features Marilyn Burton, Specialist Haemaglobinopathy Nurse Practitioner and Centre Manager of the Sickle Cell and Thalassaemia Centre Manchester and rugby league player Ade Adebisi.
The video is made in partnership with Fixers, young people using their past to fix their future.
Former boxer and personal trainer, Bobbi-Joe Edwards contacted us early in 2022 to say he wanted to hold a boxing event to fundraise for SCCM. Little did we know that the event would be as professional and well organised as it was and that Bobbi-Joe would go on to become such an important partner of Sickle Cell Care Manchester.
Thanks so much Bobbi-Joe for choosing us as a charity benefiting from your hard work. This year’s event on the 17th June raised £254 and we are so grateful to everyone who donated. Blessings to all of you!
Our SCCM Engagement Report commissioned by Manchester Health and Care Commissioning in 2019 highlighted how Sickle Cell Disease affects people and the improvements patients want to see in how the health service treats and cares for them.
Since then, the No One’s Listening Report has confirmed that things have not changed and that understanding of the disease is still too low. How many more reports will it take before we see an improvement?
Access the report on our Resources page
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