SICKLE CELL RESOURCES
SICKLE CELL RESOURCES
UCLH NHS Foundation Trust
This is a Haematology Coordinating Centre page that hosts Living with Sickle Cell Disorder – a guide for patients
MTS Sickle Cell Foundation
A website with sickle cell awareness information to distribute to the community for educational purposes
Frontline Geonomics – Lyndsey Fletcher
Sickle Cell Disease: A 2025 Update is a website focusing on developments in geonomics such as gene editing and CRISPR
Liverpool Sickle Cell & Thalassaemia Support Group
A support group based in Liverpool that offers a range of activities and events.
Sickle Cell Disease News
Sickle Cell Disease News is a Bionews publication that focuses on sickle stories and news.
Sickle Cell Society
A London based charity that supports people with sickle cell with activities, events, information and advice.
Red Cell Network
The Red Cell Network is part of the NHS Haemoglobinopathy Coordinating Centre.
Oscar Birmingham
A charity supporting individuals affected by Sickle Cell and Thalassaemia Disorders.
SickleFES
A London based charity connecting individuals with sickle cell disease and helping them feel valued and supported.
Let’s Keep Talking
A free, accessible, high quality ‘talking therapy’ for anyone in need of support, including those living with sickle cell disease
Health Awareness
A website with articles on health conditions including for people in “rare diseases communities such a sickle cell warriors.
Card Project UK
Based in the Lake District, a company that designs, prints and manages ID cards, including the sickle cell card which some warriors use.
Sickle Cell & Thalassaemia Support Project
A group that addresses health disparities in Wolverhampton, Walsall, and Dudley for families affected by sickle cell disease or thalassaemia.
