Sickle Cell – A Course For Carers
Caring for someone with sickle cell disease can bring questions, challenges and uncertainty—but you don’t have to navigate it alone. This self-paced course has been created by Sickle Cell Care Manchester to provide practical guidance, trusted information and everyday strategies to help you feel more informed, more confident and better supported in your caring role. Whether you are a parent, partner, family member, friend or unpaid carer, this course will help you understand sickle cell disease and explore ways to provide compassionate support while also looking after your own wellbeing.
Course Highlights
4 Self-Paced Modules
Practical Everyday Guidance
Downloadable Resources
Reflection Activities
Certificate of Completion
Is This Course for You?
This course has been designed for anyone supporting someone living with sickle cell disease (SCD), including:
What You Will Gain
By completing this course, you will:
Better understand what sickle cell disease is and how it affects daily life
Feel more confident supporting someone during periods of illness and wellbeing
Learn practical ways to encourage independence while providing appropriate support
Improve communication and understanding within your family or support network
Discover strategies to care for your own wellbeing while caring for someone else
Know where to find trusted information and additional support.
Your Learning Journey
Module 1 – Understanding Sickle Cell Disease
Build a clear understanding of sickle cell disease, common symptoms, pain crises, triggers and the everyday realities of living with the condition.
Module 2 – Providing Practical Support
Learn practical ways to support someone through everyday life, recognise when additional help may be needed and encourage independence wherever possible.
Module 3 – Communication, Relationships and Emotional Wellbeing
Explore how sickle cell disease can affect emotions, family life and relationships, while learning communication strategies that strengthen trust and understanding.
Module 4 – Looking After Yourself and Planning Ahead
Discover the importance of self-care as a carer, explore available support services and develop confidence for the future.
What’s Included?
Throughout the course you’ll have access to:
Videos are hosted on You Tube for easy of access. You will need a You Tube account.
These checklists will help you become more organised which in turn, will reduce stress for both you and the person you are caring for.
These are accessed via the SCCM website.
Real people sharing their stories and experiences for your benefit.
These activities are designed to make you think – there is no right or wrong answer.
These services have been tested by ourselves and our clients.
Why Learn with SCCM?
At Sickle Cell Care Manchester, we understand that carers often receive very little practical information or support, despite the vital role they play.
Our learning has been developed with and informed by people living with sickle cell disease, carers, families and healthcare professionals to provide practical guidance that reflects real-life experiences.
We believe informed carers feel more confident, families feel better supported and people living with sickle cell disease experience better outcomes.
Frequently Asked Questions
Ready to Begin?
Every carer’s journey is different, but no one should have to face it without the right information and support. Take the next step in building your confidence, understanding and practical skills to support someone living with sickle cell disease.
