Questions to Ask Your Doctor

Living with Sickle Cell Disease (SCD) isn’t easy—but being informed and proactive can make all the difference. One of the most powerful tools you have in managing your health is strong, open relationships with your GP and specialist doctors.

Asking the right questions can help you better understand your condition, explore treatment options, and live a healthier, fuller life. Whether you’re newly diagnosed or have been living with SCD for years, here are 10 essential questions to ask your doctor during your next visit.

1. What Type of Sickle Cell Disease Do I Have?

Not all sickle cell types are the same. The most common are HbSS, HbSC, HbS-beta-thalassemia, and others. Each type can affect your body differently so knowing your type helps determine the best approach to managing your health.

2. What Are the Best Treatment Options Available to Me?

From hydroxyurea and pain management to transfusions and emerging therapies like gene editing, ask which treatments suit your needs. Then your provider can tailor a plan based on your medical history, complications, and lifestyle.

3. What Symptoms or Warning Signs Should I Watch Out For?

Some complications of SCD—like stroke, acute chest syndrome, or leg ulcers—can come on suddenly. Therefore, it pays to ask about red flags you shouldn’t ignore and what steps to take if they occur.

4. What Should I Do During a Sickle Cell Crisis?

Sickle cell crises can be extremely painful and dangerous. Your doctor can help you create a pain management plan and above all, guide you on when symptoms require emergency care.

5. How Can I Prevent Long-Term Complications?

Organ damage, infections, and bone complications are risks tied to long-term SCD. Ask your provider how regular screenings, vaccinations, and healthy habits can reduce your risks.

6. Are There Any New Treatments or Clinical Trials I Should Consider?

From gene therapy to CRISPR technology, new treatments are on the horizon. Your doctor may know of local or national clinical trials that could be a good fit for you.

7. How Can I Manage My Pain Safely and Effectively?

Chronic pain is a reality for many with SCD. Your care team can recommend safe use of medications, physical therapy, mental health support, or integrative approaches like acupuncture.

8. What Lifestyle Changes Can Help Me Feel Better?

Daily habits matter! Ask your doctor how hydration, diet, exercise, sleep, and stress management can affect your condition—and what small changes might make a big difference.

9. What Should I Know About Pregnancy and Genetic Counselling?

SCD can impact fertility, pregnancy, and the chances of passing the disease to children. Therefore, If you’re planning a family, genetic counselling and reproductive options should be part of your care plan.

10. Are There Resources or Support Groups I Can Connect With?

Sickle cell management goes beyond physical care. Ask about counselling, local support groups, patient advocates, or national organisations that can support you emotionally, socially, and financially.

Final Thoughts

In conclusion, being an empowered patient starts with asking the right questions. Bring this list to your next appointment and use it as a conversation starter with your GP or specialist doctor. Sickle cell may be a lifelong condition, but knowledge is power so make yourself as powerful as you can be.

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